Questions for your neuroendocrine specialist

Understand the diagnosis

• What is the full name of my diagnosis, and where did it begin?
• Is it a well-differentiated NET or a poorly differentiated NEC?
• What are the grade, Ki-67 result, and mitotic rate? Which tissue sample was tested?
• What is the stage, and where has the cancer been found?
• Is the tumor causing a hormone-related syndrome?
• Would another pathology review or genetic counseling help answer an unresolved question?

Your team can explain which questions apply to your tumor type and what is still uncertain. NCI: Questions about your diagnosis · NCI: Pancreatic NET diagnosis and staging

Compare the plan and alternatives

• What is the main goal now: removing the cancer, controlling its growth, relieving symptoms, or a combination?
• What options fit my situation, and why do you favor this one?
• How soon does a decision need to be made?
• What benefits are realistic, and what important risks or long-term effects should I understand?
• How will you check whether the plan is working, and what would lead you to change it?
• Would a second opinion from a team experienced with this tumor type be useful?

Plan for day-to-day care

• Which symptoms or side effects need urgent attention, and who should I contact after hours?
• Who can help with eating, pain, fatigue, emotional strain, or treatment costs?
• How might treatment affect work, travel, fertility, or other priorities that matter to me?

Your own goals belong in these discussions alongside the medical findings. NCI: Questions about treatment and side effects

If a trial is being considered

• What question is the study trying to answer, and which parts are investigational?
• How does participation compare with my other options?
• What extra visits, risks, expenses, and privacy considerations are involved?
• If I stop participating, what care remains available?

Ask the research team to explain uncertain benefits as clearly as known risks. NCI: Questions and considerations before joining a clinical trial

Before leaving, confirm the next step, who will arrange it, and whom to contact with questions.